Lucys Fight

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Lucy's Story

Going Down Under

On 20th August I started the 36 hour journey to the country that I said I’d never go to.

Its the home of the worlds most deadly animals and being the scaredy cat I am, before becoming ill I had no intention of tempting fate. The animals were no longer my biggest fear, leaving my parents and travelling half way across the world was. Leaving my safe haven was what was worrying me, In my house I can move about freely I know where to hold on to and where I can let go and walk freely. So whenever I go and stay anywhere, I hate it cause I lose that freedom of getting up and going where I’d like to... Read More >>>


Italy in a wheelchair

I’d first like to say a massive thank you to Dani and Pippa for being strong and courageous enough to go on holiday with me!

I’m so blessed to have great friends like you guys and there's no one else I'd rather have gone with. I know I’m not the easiest patient and I’m a lot of hard work, so I suppose thank you so much for putting up with me haha. I'm sure my Mum and Dad thank you too for bring me home safe and in one piece, although my Mum will probably make a joke along the lines of that you should've left me there, but she loves me really... Read More >>>


Fear and Relationships

Each time I write I have to be willing to open myself up and with every post that I write I cry without fail, and I’m sure this one will be no different!

The best time for me to write is usually at night because I know no one will walk in on me crying and I can fully concentrate on my thoughts and feelings. It's less painful for me if I write it in one go too, as I don’t want to dwell on certain parts, I’d just prefer to get it over and done with. That sounds like I don’t enjoy writing my blog, but I love it. Each post I learn something new about myself. I gain clarity once I’ve written it down and tried to explain it... Read More >>>


My Ickle Sister

Hi! I'm Laura, Lucy's sister. I just wanted to share my experience of Lucy's diagnosis with you all.

I still remember the pain I felt when my mum finally told me what was wrong with Lucy. I remember it like it was yesterday. My mum had text me to say that she was coming to visit me in Dundee for the night, which I was really excited about, but I had to go to the cinema with my college class to see one of the worst films I have ever seen! It was so bad a bunch of us walked out half way through! Anyway, I finally got home after waiting for a bus that never came and having to call a taxi... Read More >>>


People Involved

Since being diagnosed, I’ve been visited by multiple health professionals. It’s incredible how many people are involved with my care, to make my life easier as my illness progresses.

Firstly, I have an MND specialist nurse – she has a wide knowledge of MND patients, which allows her to have a more informed idea ofwhere my illness could take me. She is paid by the MND Scotland charity, and without her, my care wouldn’t be as efficient. Next there’s an Occupational Therapist who helps me with my life around the house, to make tasks easier and maintain my independence for as long as possible. My Speech and language therapist keeps track of my speech and swallowing, as the majority of MND patients lose the ability to speak. Because of this, I need to learn to use a speaking aid before it gets to that stage... Read More >>>


Feelings Revealed

Recently I went to see a Maxillofacial Specialist about my jaw dislocating. Before every appointment I have been getting extremely nervous, but this was the worst one by far as I knew that the news wasn’t going to be good.

Sitting in the examination chair, I explained what happens to my jaw when it dislocates and how I get it back into place. The doctor had a feel around my jaw line before asking me to open and close my mouth repeatedly. He explained to me briefly how the jaw works normally before describing what was happening to mine. Apparently my ligaments and cartilage are stretched and that surgery is required to fix this, by either taking away bone or making dislocation harder my increasing the size of the bone already there. Wherever possible I shoot down the idea of surgery before I start to get upset, I’m determined to stay out of hospital beds and theatre until I really need to. If I felt my quality of life would be better, then I’d have no option, but I don’t feel that I’m at this stage yet. My jaw doesn’t cause me a great deal of pain and if it does, which isn’t often, it doesn’t last long. Surgery is a different ball game that I’m not ready for just now... Read More >>>


Telling People

The taxi ride to the flat was an emotional one, I spent the ride looking out of the window while trying to fight back my tears with a few escaping now and then.

Finally back in my room, I told my dad that I just wanted to go to sleep because I didn't want to talk about my feelings or the diagnoses. At that moment in time I didn't fully understand the seriousness of my illness, all I wanted to do was research what MND entailed but with my dad by my side I couldn't do it. I thought it would be selfish and inappropriate, as I wasn't too sure if he wanted to learn that information just yet. I texted my best friend Kim Goodchild to get her to give me a ring when she was free and as she was in a lecture we just texted back and forth for a while as soon as she got out of the lecture I told her I had MND. Kim knew that I'd visited the doctors several times as well as the neurologist and been in hospital, but I hid the majority of my symptoms... Read More >>>


Diagnosis

I, Lucy Lintott was diagnosed with the incurable terminal illness known as Motor Neuron Disease (MND).

I’d known for a while that something wasn’t right, as I started losing strength in my left hand, and then my balance and co-ordination started to deteriorate. I was walking into things and falling over easily and more often. I knew I needed to see the doctor, but I was also aware that if I was diagnosed with anything before going to work in America for the summer, that my chances of being able to go would be minimised. After coming home from America, I realised that I was having difficulty opening my left hand for long periods of time, walking on my toes on my left foot instead of using my whole foot, my muscles would vibrate viciously when I was seated or standing, I started to just fall over randomly even when I was on flat ground, my bladder functions were becoming urgent and my walk was becoming slow and stubbling... Read More >>>

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You can contact Lucy by emailing: lucysfight@hotmail.com